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Deviation Actions
*** Monday 29th June 2015 ***
Hi it's me again. Thanks again for all your touching messages. They help me, thanks.
I had an appointment to find out my line attachment for the chemotherapy treatment to come. The nurse checked my right arm veins with ultrasound equipment and says they are large and excellent for the PICC device (ie. a tube will be inserted into my elbow through a large vein, going up my arm and across my chest area, over my heart, for when the liquid chemotherapy medicines are introduced). The nurse has booked me in for an insertion date, next Tuesday, but may happen earlier if an early slot is available.
After a few days after the insertion, I will have to go back to the hospital for 6 hours of sitting in a chair getting my chemo medicines one by one on a drip (3 drugs = medicine cocktail). As I said before, the last chemo medicine is in a small pump (attached to my upper arm) that pumps the medicine for 46 hours into me. So I go home for 2 days. On the 3rd day I go back to the hospital to get the pump removed and the line to my chest is flushed out. They leave the line in me. I get to go home once this is done, and I have to keep an eye on any symptoms that may arise. No more chemo medicine is introduced till the cycle is up (14 days = 1 cycle) and then I go back to the hospital and start a new cycle.
As this proceeds there will be blood tests done by my local GP Duty Nurse and the cancer specialists at the hospital keep an eye on how I am handling the chemotherapy dosages.
Common effects/symptoms to expect during chemotherapy treatment which should pass after treatment:
- I have to be careful with the sun as my skin will be super sensitive. So I have to use lots of moisturisers, wear a large hat and generally cover myself up. Some products are supplied by the hospital pharmacy as they are aware of my chemotherapy treatment.
- Wash with lukewarm water, not hot., Skin becomes very sensitive.
- Hair will fall out, during treatment.
- Tiredness.
- Spots/rash develop. Do not scratch.
- Sickness/diarrhoea/etc. All the not so nice things.
My specialist recommends that I make a 'Chemotherapy Symptoms Diary' to keep a solid log of what my body is going through, so I bought a small notebook for my 12 weeks of treatment. It will also keep me straight as being tired through the treatment, my memory will be crap. I won't be going into detail on that on my DA Journal. May be distressing.
I also bought a digital thermometer to check myself when not feeling good. The info will be handy for doctors/specialists that need to know if I have problems over the phone. I have a cancer treatment hotline telephone number, just in case.
Today I was also introduced to a lovely peaceful cancer group called the 'Maggie's Centre'. They have a cool wee modern building based at the back of the hospital, surrounded by a nice big flower garden. It is run by specialists and volunteers. A lot of similar patients on the chemotherapy treatment visit there for a natter and a cup of tea. If you want to share what your going through, they listen and don't judge you, and share similar situations. Seems very cool and groovy for what seems like a long stretch of treatment. A quiet place. Somewhere to get things off your chest with similar people in the same situation.
So this week is going to be the relax week. Calm before the storm, and all that. Roll on September.
All the best,
Muz xxx
Hi it's me again. Thanks again for all your touching messages. They help me, thanks.
I had an appointment to find out my line attachment for the chemotherapy treatment to come. The nurse checked my right arm veins with ultrasound equipment and says they are large and excellent for the PICC device (ie. a tube will be inserted into my elbow through a large vein, going up my arm and across my chest area, over my heart, for when the liquid chemotherapy medicines are introduced). The nurse has booked me in for an insertion date, next Tuesday, but may happen earlier if an early slot is available.
After a few days after the insertion, I will have to go back to the hospital for 6 hours of sitting in a chair getting my chemo medicines one by one on a drip (3 drugs = medicine cocktail). As I said before, the last chemo medicine is in a small pump (attached to my upper arm) that pumps the medicine for 46 hours into me. So I go home for 2 days. On the 3rd day I go back to the hospital to get the pump removed and the line to my chest is flushed out. They leave the line in me. I get to go home once this is done, and I have to keep an eye on any symptoms that may arise. No more chemo medicine is introduced till the cycle is up (14 days = 1 cycle) and then I go back to the hospital and start a new cycle.
As this proceeds there will be blood tests done by my local GP Duty Nurse and the cancer specialists at the hospital keep an eye on how I am handling the chemotherapy dosages.
Common effects/symptoms to expect during chemotherapy treatment which should pass after treatment:
- I have to be careful with the sun as my skin will be super sensitive. So I have to use lots of moisturisers, wear a large hat and generally cover myself up. Some products are supplied by the hospital pharmacy as they are aware of my chemotherapy treatment.
- Wash with lukewarm water, not hot., Skin becomes very sensitive.
- Hair will fall out, during treatment.
- Tiredness.
- Spots/rash develop. Do not scratch.
- Sickness/diarrhoea/etc. All the not so nice things.
My specialist recommends that I make a 'Chemotherapy Symptoms Diary' to keep a solid log of what my body is going through, so I bought a small notebook for my 12 weeks of treatment. It will also keep me straight as being tired through the treatment, my memory will be crap. I won't be going into detail on that on my DA Journal. May be distressing.
I also bought a digital thermometer to check myself when not feeling good. The info will be handy for doctors/specialists that need to know if I have problems over the phone. I have a cancer treatment hotline telephone number, just in case.
Today I was also introduced to a lovely peaceful cancer group called the 'Maggie's Centre'. They have a cool wee modern building based at the back of the hospital, surrounded by a nice big flower garden. It is run by specialists and volunteers. A lot of similar patients on the chemotherapy treatment visit there for a natter and a cup of tea. If you want to share what your going through, they listen and don't judge you, and share similar situations. Seems very cool and groovy for what seems like a long stretch of treatment. A quiet place. Somewhere to get things off your chest with similar people in the same situation.
So this week is going to be the relax week. Calm before the storm, and all that. Roll on September.
All the best,
Muz xxx
Murray - update
Hello everyone, this is Murray's brother Donald.
I know Murray was using this journal to keep you updated on his progress. It breaks my heart to have to write this but he sadly passed away last Friday evening. He had been hugely strong throughout these last three years and is now at peace.
His health deteriorated quickly over the last week and he died peacefully at the Marie Curie hospice in Fairmilehead, Edinburgh with his family around him. I know he had a lot of friends on here who gave him loads of support and for that I thank you.
I want to make sure his legacy is preserved on here and will need to work out the best way to do that.
Haemoglobin Levels
Thursday 12th July 2018
Hello there.... :wave:
I got a phone call from the Cancer Clinic yesterday morning, from one of their nurses. It seems my 'Haemoglobin' levels have not changed (after they studied my blood sample taken by my GP on Tuesday). The nurse is happy that the level has not dropped, but still wishes to get another blood sample, next Tuesday via my GP (the week before my next cycle of chemotherapy treatment). If it does drop, they may give me another blood transfusion. We shall see what happens. The earlier they know, the easier it will be for the clinic/hospital to book me bags of blood for the possible transfusion.
--------
Update on Chemo
Friday 6th July 2018
Hello,
Yesterday was a bit muddled!! I shall continue...
----------xXx----------
Thursday 5th July 2018
At 11:30am I got a taxi to the the Cancer Clinic. I met the Cancer Doctor that I had the chat with about the results of my recent CT-SCAN. I quickly mentioned my current gastric 'PLUG' problem thing which had bothered me for a while. It had fantastically disappeared/moved out the night before. So my sleep positions were back to normal and I could get more sleep with less soreness. Only pain when sleeping would be my right-hand side where my tumour is (it swells my liver up also). I avoid that side. We were both hap
Summoned
Tuesday 3rd July 2018
I gave blood at 10:20am today (same every third Tuesday, a few days before my next cycle of chemotherapy treatment on Thursday). It went ok. Because of my recent anemia I felt ancient getting a bus up the road home instead of walking.
12:00 noon I got a phone call from a nurse at the cancer ward asking how I have been coping. I explained my gut/tummy pain (opposite to liver/tumor side) which has been very uncomfortable, especially when I attempt to sleep. I also told her of my anemia creeping back like before.
She phoned back later requesting me to go into the cancer ward in a few hours for a checkup by a ward doctor.
© 2015 - 2024 muzski
Comments9
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Seems you have the ins and outs of this figured out, that is really helpful, to at least know what exactly is going on there.
Sorry to hear you need to wait again. Also if you cant read or concentrate please do not get nervous about it, the things you are going through are amazingly tough and it is kind of to be expected. You can try and take a handheld device (mobile of tablet), maybe it will hold your attention better.
Man 12 weeks wish you all the best mate
Sorry to hear you need to wait again. Also if you cant read or concentrate please do not get nervous about it, the things you are going through are amazingly tough and it is kind of to be expected. You can try and take a handheld device (mobile of tablet), maybe it will hold your attention better.
Man 12 weeks wish you all the best mate